ALS Information, Resources and Web Sites
These guys above are some of the "Kramer's Rangers" that join us on walk day. All do a bang up job each year so we are expecting GREAT things next year. These are just a few of the places to gather and or veiw information about the large perameters that deal with ALS (Lou Gehrigs Disease). As I am able I will keep this as up to date as my abilities will allow. However, Al's resource page listed in the "Over 5 Club" page has a much larger selection and is better qualified to keep the larger selections.
ALS Web sites that I have collected over the last 13 years. Hope their of some use to you. Feel free to add to the list any time. You'll have to cut and paste the addresses below. Sorry! ALS Web sites that I have collected over the last 17 years. Hope their of some use to you. Feel free to add to the list any time.
ALS Doesn't Masquerade As Lyme Disease, Experts Say http://www.mdausa.org/publications/als/als8_3.html#lyme
http://www.mdausa.org/publications/als/als8_4.html#isit
Here's a post I wrote before on this topic. http://health.groups.yahoo.com/group/living-with-als/message/32865
The "Mercury Toxicity" Scam:: How Anti-Amalgamists Swindle People http://www.quackwatch.org/01QuackeryRelatedTopics/mercury.html
Twenty-Five Ways to Spot Quacks and Vitamin Pushers http://www.quackwatch.org/01QuackeryRelatedTopics/spotquack.html
Ten Ways to Avoid Being Quacked http://www.quackwatch.org/01QuackeryRelatedTopics/avoid.html
Spontaneous Remission and the Placebo Effect http://www.quackwatch.org/04ConsumerEducation/placebo.html
General Information;
http://www.hopkinsmedicine.org/alscenter/index.cfm
http://www.youreable.com/TwoShare/getPage/Welcome/Introduction
http://www.lougehrigsdisease.net/http://groups.msn.com/ALSsupportchat
http://www.snopes.com/
http://www.spinlife.com/
http://www.wfnals.org/index.html
http://www.directory.net/Society/Disabled/Travel/Rental_Vans_and_Hand
http://www.rxmarihuana.com/
http://www.sciencemag.org/feature/data/als/
http://residents.bowhunting.net/DisabledHunters/
http://www.catalaw.com/sk/index2.shtml?comments.shtml
http://www.angletechcycles.com/bikes/special_needs_bikes.htm
http://www.blvd.com/
http://tpals.org/inhttp:/
www.welcomefunds.com/?g-alsdex.htm
http://www.viewpointmobility.com/
http://www.alscenter.org/
http://www.uic.edu/ahp/OT/occutech/CASE/ROSS/links/wheelchair.html
http://www.edmond-
http://www.midlandmobility.co.uk/W%
http://www.jhemerson.com/
http://www.jhemerson.com/coughassist.htm
http://www.jhemerson.com/studies.htm
http://www.nbc6.net/health/1243622/detail.html
http://www.image-management.com/MobilityAccess/BarrierFreeLifts/Slings.htm#Universal%20Head%20Support%20Sling
http://www.ccguide.org.uk/medical.html
http://www.adaptivelifts.com/ http://www.amsvans.com/site.asp?q=inventory&i=05
http://www.natural-access.com/Default.htm http://www.braunlift.com/
http://www.canorml.org/healthfacts/vaporizerstudy1.html
www.continentalcrusade.com
http://www.hopeforals.com/
http://www.vestil.com/wc/extreme4x4.htm
http://www.focusonals.com/index.htm
http://www.acmed.org/english/home.htm
http://www.globalinventure.com/supp2.htm
http://www.mpp.org/http:
file://medicalmarijuanaprocon.org/
http://www.nlm.nih.gov/medlineplus/amyotrophiclateralsclerosis.html
http://www.alsa-or.org/treatment/Swallowing
http://www.miusa.org/general/links.html
Hongyun Huang Chair & Professor Second Department of Neurosurgery Beijing Chaoyang Hospital Affiliated Capital University of Medical Science 8 Baijiazhuang Road Beijing, P.R. China 100020 office: 86-10-85231762; fax: 86-10-65005359
Care cure Link http://carecure.atinfopop.com/4/OpenTopic? a=tpc&s=4754088921&f=3854088921&m=512104661
Send Leo To China Link http://www.iw.net/~lhallan/Send%20Leo%20To%20China.htm
Bi-Paps
http://tpals.org/bipap.htm
www.hybridmask.com
http://www.cpapsupplyusa.com
http://www.cpapman.com/respiron.html
Catheters;
http://www.bioderm-inc.com/products.htm
Communication and Computer Sites;
http://www.phc-online.com/liftchair.htm
http://www.eyeresponse.com/
http://www.words-plus.com/website/products/soft/ezkeys.htm
http://intellipointer.com
http://www.augtechno.com/store
augmentative@axixa.com
http://www.microsoft.com/enable/guides/language.aspx#step20
http://www.cdw.com/shop/products/default.aspx?EDC=231512
The internet location for the Smartnav mouse is http://www.naturalpoint.com/.
http://orin.com/index.htm
www.orin.com
http://www.neuralsignals.com/index.htm = computer adaptive head array. http://www.enablema rt.com/Catalog/ Trackballs- Joysticks/ BIGtrack = mouse http://www.kid- computers. com/catalog/ i_25442.shtml = mouse OR http://www.fentek- ind.com/Bigtrack .htm = mouse
Devices (Wheelchairs scooters etc.) http://www.westons.me.uk/acatalog/index.html
http://www.drivemaster.net/steering.htm
http://www.discountwheelchair.com/discountwheelchair_001.htm
http://permobilusa.com/
http://www.permobilusa.com/products-ped-ch-robo.htm
http://www.easypivot.com./
http://www.wheelchairjeans.com/
http://www.wheelchairs-in-1.com/index.htm
http://www.disableddealer.com/
http://www.electricwheelchairs.ws/
http://www.wheelchairjunkie.com/cgi-bin/Ultimate.cgi?
http://www.adaptiveaccess.com/wood_ramps.php http://www.wheelchairs-in-1.com/index.htm http://www.stnonline.com/stn/specialneeds/crash_protection.htm
http://www.alibaba.com/trade/search? http://www.grumpypenguin.com/wheelchairs.htm
http://www.jhemerson.com/coughassist.htm
http://www.conchbbs.com/xpress_it.htm
http://www.voicerecognition.com/cgi-bin/ubbcgi/forumdisplay.cgi?action=topics&number=1&SUBMIT=Go.
http://www.beachwheelchair.com/
http://www.patientsafetycenter.com/TechResGuide/09-01.htm
Government Offices and Points of contact;
http://www.govbenefits.gov/index.jsp
http://www.ilusa.com/links/ilcenters.htm
http://www.senate.gov/general/contact_information/senators_cfm.cfm
http://www.house.gov/writerep/
http://www.ninds.nih.gov/health_and_medical/disorders/amyotrophiclate
http://www.archives.gov/research_room/vetrecs/
http://www.dhs.state.or.us/publichealth/chs/newsltr/oht53/trends53.cfm
G-Tube sites;
http://tpals.org/ftube.htm
http://www.allegromedical.com/patient_care/enteral_feeding/superior_surgical/drainage_bulb_and_g_tube_holder.P173183_
http://www.allegromedical.com/patient_care/enteral_feeding/superior_surgical/drainage_bulb_ and_g_tube_holder.P173183)
http://www.mdaenespanol.org/
http://g-tube.com
Home care Sites;
http://www.alsnurse.com/index.html
http://www.alslinks.com/books.htm
http://www.hhmi.org/index.html
http://www.virtualcil.net/cils/
http://home.goulburn.net.au/~shack/
http://www.allegromedical.com/Home/moreinfo.asp?C=530&S=3697&M=15272&P=190780
http://www.ninds.nih.gov/health_and_medical/disorders/motor_neuron_diseases.htm
http://www.amazon.com/exec/obidos/ASIN/1888725184/alsalsresoupage/002-4851543-2704804
http://www.alsnurse.com/index.html
http://www.infouse.com/pas/hiring/hiring3.html
http://www.infouse.com/pas/index.html
http://www.banis-associates.com/books/attend.htm
http://www.caregiver911.com/_poets_corner/poets_corner.htm
http://www.care-givers.com/pages/inspiration/3poems.html
Guldmann model
Jonathan’s & son 1055 W. College Avenue Santa Rosa, CA. 95401 707-538-3210 tollfree 707-887-8184 www.jonathansson.com
http://www.techforltc.org/ltc.cfm?pageid=157&product=1735&careissue=1391
Personal Web Pages;
http://55jer.com/jackies%20page.htm http://www.patdemar.com/beach.htm
http://hometown.aol.com/abe11/Davesindex.html_
http://www.hawking.org.uk/home/hindex.html
http://home.pacbell.net/ranger-1
http://www.55jer.com/randysalsmanual.htm
Supportive Organizations;
www.alsabayarea.org
http://www.als.net/default.asp
http://www.alslinks.com/
http://www.mdausa.org/publications/als/.
http://www.mdausa.org/publications/Quest/index.html
www.alsa.org
http://www.catfishchapter.org
http://neuro-www.mgh.harvard.edu/
www.lougehrigsdisease.net
www.als-tdf.org/alstdf
www.rideforlife.com
www.projectals.org
www.extrahands.org
http://www.march-of-faces.org/
www.alsmndalliance.org
www.hopeforals.com
http://www.cdnpals.ca
http://hsrd.durham.med.va.gov/alsregistry.asp
Support Groups/ Web Talk Site;
http://braintalk.org
http://rideforlife.com/alsbb/index.php
http://groups.msn.com/ALSsupportchat/yourwebpage.msnw
http://database.azstarnet.com/dynamic/plsql/mdachat11 http://neuro-mancer.mgh.harvard.edu/echat42/ALS/
http://groups.msn.com/PALSPeoplewithALS/_homepage.msnw?pgmarket=en-
http://health.groups.yahoo.com/group/living-with-als/messages
http://www.epic4health.com/liquidcoq10.html
Travel Info:
http://www.disabilitytravel.com/travel_tips.htm#wheelchairscooter
http://www.carevacations.com/.
http://www.coughassist.com/coughassist.htm
http://www.itsmarta .com/howto/ special/para. htm
The National Center on Accessibility (www.ncaonline.org)
Makoa.org
www.access-able.com
www.tsa.gov
Accessible Vans of America (1-888-282-8267) and Wheelchair Getaways (1-800-642-2042) provide nationwide wheelchair van rentals
http://www.nycvisit.com/content/index.cfm?pagePkey=174
Vent Sites;
http://www.ventilatordistributor.com/pages/ltv900.htm
http://www.doctorbach.com/
http://uk.geocities.com/jeannie_25als@btinternet.com/
http://neuro-mancer.mgh.harvard.edu/echat42/ALS/
http://www.worldpompe.org/FlyingwithaventilatorintheUSA2.pdf Aequitron (now Nellcor Puritan Bennett) - LP10, LP20, LP6+ HAMILTON MEDICAL, Ventilators for Intensive Care Impact Instrumentation Impact Instrumentation, Inc. - suction machines J.H. Emerson Co. - In-Exsufflator Lifecare International (now Respironics)- PLV Series portable volume ventilator, Nev-100 Negative Pressure Ventilator Lincare - home respiratory care and supplies Nellcor Puritan Bennett - Companionr 2801, O'Nyx Plus & KnightStar 335 Portable Ventilators Nebulizers & Aspirators Newport NMI - Newport Medical Instruments - Ventilators Pulmonetic Systems - LTV1000 Ventilator Respironics - non-invasive ventilatory systems VORTRAN Medical Technology - RespirTech Pro a fully automatic, single patient use resuscitator _http://www.tpals.org/trach.htm_
The vent users support site is also good. http://www.makoa.org/vent/_
Another good site for basic info. http://www.tracheostomy.com/_
http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfRES/res.cfm?ID=45200
http://ventworld.com
http://alsdon.blogspot.com/
http://www.boosttechnology.com/products.html
www.kayjae.com
ALS - Brain Talk 2 Communities http://forums.braintalk2.org/forumdisplay.php?s=&daysprune=&f=6
