| # | Date | Name | Email Address |
|---|
| Comments |
|---|
| 1 | Wed Feb 17 1999 18:37 | Bill and Tina Kramer
| baddogs@pacbell.net |
| Nice page, come over and show me how to start ours, cant figure it out. |
| 2 | Fri Feb 19 1999 15:09 | Liz
| h2oyarlott@aol.com |
Just surfing through. Have a nice day
|
| 3 | Wed Feb 24 1999 19:28 | Amber
| sunflwrber@aol.com |
| Hi! Just stopped by to see your web site. I am sure you have heard that I am engaged. Well, that is my latest news. |
| 4 | Tue Mar 23 1999 20:50 | Elizabeth Yarlott
| H2oyarlott@aol.com |
Just popped in to see what is new. Hope all is well with you. Have a nice Easter.
|
| 5 | Wed Apr 28 1999 23:24 | John & Janice Hefner
| lazyj5@webtv.net lazyjm5@webtv.net |
Thanks for the scooter |
| 6 | Fri May 21 1999 07:37 | Bill
| wrblos@ibm.net |
Congratulations!!! Super start on a beautiful
message, Lee. Stick to it and we'll all be rewarded
for years to come.
|
| 7 | Fri May 21 1999 08:20 | Howard S. Edwards
| howric002@aol.com |
What a pleasure and honor to participate in this.
|
| 8 | Fri May 21 1999 13:45 | George Johnson
| Burrius@wirefire.com |
Great looking site so far, I will stop in from
time to time This is my new address God bless
George
|
| 9 | Fri May 21 1999 13:46 | Ed White
| elwhldns@ktc.com |
Leroy, your web site is good & I hope you can add
to it as time goes. Enjoyed reading the background
info of you & family. Best regards, Ed |
| 10 | Sat May 22 1999 09:39 | Mary Ellen Cusack
| emcusack@aol.com |
| What a wonderful job you are doing!!!! It is so refreshing and uplifting to know that someone else is in the same boat and so caring also |
| 11 | Sat May 22 1999 11:27 | MILT RUNNING
| mdruning@info-link.net |
| You sure have a nice family, no wonder you look so proud. MILT |
| 12 | Sat May 22 1999 13:55 | Bill and Tina Kramer
| baddogs@pacbell.net |
Good job Anne and Lee.
Love the pictures
Now you have to show us how to do this. |
| 13 | Sun May 23 1999 07:31 | Larry & Elizabeth Yarlott
| Culligan4u@aol.com & H2oyarlott@aol.com |
It's turning into a nice page. Great job.
|
| 14 | Mon Jun 28 1999 10:10 | Bill and Tina Kramer
| baddogs@pacbell.net |
Well finally the guest book works.
Looks great Lee, we will be back soon to
see what else you have added.
Talk to you guys soon |
| 15 | Thu Jul 8 1999 20:21 | David Yarborough
| |
This was had\rd to get to. I had to go thought
4 engines to find it. |
| 16 | Sun Aug 8 1999 15:06 | Paul Wilson and Lori Clarke
| paulwil@up.net |
Lee and Ann,
Sorry I missed the cook-out and your entire summer visit
Time gets away from all of us. Paul & I enjoyed your
homepage and especially the picture of Paul - ha ha.
Take care and keep up the fight. Will write again now
that we have this bookmarked!
|
| 17 | Thu Aug 12 1999 16:00 | Don Altier
| ALSfighter@aol.com |
| Good Work- It inspires me to get a web page for my family! Thanks for mentioning me as a positive influence on living with ALS. I know that GOD IS WORKING THRU US to change bad things to good. Oct.13 will my 7th yr anniv. of ALS diagnosis- Please insure my enrollment in the over 5 club! Your friend and PAL- Don. |
| 18 | Sun Aug 29 1999 12:40 | SHANE CARR
| carrfame@northernway.net |
hi leroy i just got my computer back from the shop and wanted to drop a line and say hello to all. i will write soon salmon fishing has been goodtake care your friend shane
|
| 19 | Tue Sep 7 1999 22:43 | sheila (mcSalmon on MGH)
| skelpin@home.com |
Hi Lee and Anne,
Just found your story. Good to hear such a loving upbeat couple. Your Michigan cohort, Sheila |
| 20 | Tue Oct 12 1999 22:09 | Donna Mae (Scholl) Cooley
| cdolphin96@aol.com |
| What a wonderful idea. Thanks for sharing and you truly are an inspiration. Come up the very positive attitude. |
| 21 | Mon Oct 25 1999 21:00 | Debbie Mack
| jrmdrmej@pacbell.net or pohdazi@yahoo.co, |
Well guys I love your home page. Great job. You
two are my inspiration for my own marriage. If you
need anything just call. See you tomorrow at concert.
|
| 22 | Thu Dec 16 1999 09:56 | Bob and Graye Bullock
| golfette@earthlink.net |
| Enjoyed reading about you and your family |
| 23 | Thu Dec 23 1999 18:59 | Rhonda Lowther
| alowther@hargray.com |
| Thanks for sharing your family with ours. It is so much help to place a name with a face. My brother-in-law , Jimbo, 40, has ALS. The Lord has helped us get through these last two years. Jim is still able to drive his car...thank you Jesus. But his health is fading fast. It hurts!! Thank you for sharing your strength with us. South Carolina |
| 24 | Fri Dec 24 1999 08:15 | Frank DeBiase
| kree@ntr.net |
I am impressed with your new website ! I live in
Kentucky my Wife Linda has ALS 2 years now actually
DX with MS April 15,1997 ( bad enough day without this eh)
The wonderfull careing neuro called us ay 7pm and
broke the good news over the phone . So after 4 mo's
of living in what we thought was Hell on earth we
were sent to mayo and a tremendous group of careing
drs ( not really) She was then given the dreaded
mark ALS. So 2- 23/4 years but whos counting?
I am having trouble figureing what supplements
to administer can you be of any assistance. What is your secret
I personally feel that none of the supplements are doing any good. But maybe you guys over5
have a secret i havent found yet.
Questions. Exercise? Creatine? Nutrition? etc...
Anything you can give would be appreciated. sure would like to be here when a cure comes.
Thanks
Frank |
| 25 | Sat Jan 8 2000 12:11 | Dogger
| |
Nice Job. lITTLE HARD ON THE
NEW GUY WEREN,T YOU ??? |
| 26 | Sun Jan 30 2000 07:00 | jorma martikainen
| jorma.martikainen@pp.inet.fi |
| greetings from an other military pals from finland |
| 27 | Sat Feb 26 2000 20:58 |
| |
|
| 28 | Sat Feb 26 2000 21:07 | Joseph Ranallette
| J7423@aol.com |
Congradulations on your wonderful web site.
I'm also a pals, 9 years this coming May/00
Also a vetran of WW2, lot older than you.
Our prayers are with you and all your family.
Reside in Southern Ca.
|
| 29 | Sun Feb 27 2000 11:38 | Robert Denham aka:DoMuch (or Bob)
| cameron@swva.net |
| A wonderful web page! I just joind the e=group as a two and a half year PALS. This is going to make the ride a lot more fun! (is there another way?) Thanks and God Bless, DoMuch. |
| 30 | Tue Mar 7 2000 15:16 | dick essey
| |
|
| 31 | Tue Mar 7 2000 15:17 | dick essey
| ressey@tempositions.com |
Lee
Just had the opportunity of viewing the web page. It's great.
Now that you are a member of the Bay Area Board maybe you'll add a link to their web page www. ALSAbayarea.org and perhaps www.ALSA.org for the National Office.
Incidently if you haven't already accessed the Bay Area's web page lately, look at What's New section on the upcoming Center for Disease Control test of entrovirus. Because of Tom Maniatis'name (who is the Chair of the Lou Gehrig Challenge/cure ALS Committee), the CDC is doing the study gratis.
Welcome to the Board.
Dick |
| 32 | Tue Mar 28 2000 14:25 | olivia Cantalamessa
| ollycantame@hotmail.com |
my father has ALS since jan 1999.
we are desperate
ciao
olivia |
| 33 | Mon May 29 2000 14:34 | Larry Reed
| l_d_reed@hotmail.com |
| Hey, musclehead!! Nice homepage. Actually very well done. Must have had major help from Anne. This is way to sophisticated for you. Hope all is well my friend. I miss your family and you and think of you often. |
| 34 | Sat Jun 17 2000 11:05 | Bill and Tina
| baddogs@pacbell.net |
Just dropped by to see if you have added anything
new, talk to you soon.
|
| 35 | Thu Jul 20 2000 08:14 | Howard Watkins
| watkinshoward@hotmail.com |
| It was good to see someone with such a positive attitude. My wife was diagnosed as having MND three years age. (London. UK) |
| 36 | Mon Jul 24 2000 16:27 | Robyn Wodnisky
| rustic.roots@sympatico.ca |
| Thank you for giving me some information. My friends mother just recently passed away. I hope a cure can be found very soon for this dreadful disease. |
| 37 | Sat Nov 4 2000 11:57 | Kristin Bazinaw
| arizonalady@sprintmail.com |
| Love your web site, great pictures. I was dx with ALS in Oct.of 98. I'm taking part in the BDNF study. I've finished 18 months, and am on the real drug. I can't see any change. I'm a flat-lander from Grand Rapids, and my husband is from Mackinac Island. We live in Arizona now. Just north of Phoenix. |
| 38 | Sun Nov 12 2000 18:29 | Greg
| ghicok@aol.com |
Looking good! :~) ALS story sounds familiar (I'm PALS, too. Check it out. "http://members.aol.com/PalsFL41/home.htm"
So long for now and take care of yourselves.
Your PALS near Jackson, Michigan, (PALS is People with ALS)
Greg
(Be sure to contact your representatives and senators about sponsoring the ALS legislation (HR353 in the House of and S1074 in the Senate). Thank you Dragon NaturallySpeaking and WiViK, my voice-to-text and typing programs and the Angels that gave them to me).
|
| 39 | Sun Jan 7 2001 01:03 | Michelle
| |
| My brother passed away in April '00 of bulbar onset ALS. He was "the great white hunter", and seeing these pictures brought back a lot of memories. Keep faith in God and he will be with you all the way. |
| 40 | Fri Feb 23 2001 14:34 | Jean Leinow
| njleinow@yahoo.com |
| What a wonderful site. I am inspired by you. I was Dx Aug.2000. Speech and loss of both hands thumb and forefinger Otherwise I am fine. Love life and intend to live a long one. We travel a lot and Have a great family so know God is with us. |
| 41 | Sat Mar 10 2001 10:20 | Jeanne
| |
| Just want to tell you how great this is! I plan to visit often. God Bless You! Love, Jeanne |
| 42 | Fri Apr 6 2001 10:20 | KIM KRAMER
| KIMAK1622@AOL.COM |
| HI! I WAS WONDERING IF WE WERE RELATED SOMEWHERE ALONG THE LINE! |
| 43 | Thu Apr 26 2001 22:55 | Tater Juice
| sambo62@yahoo.com |
| You are all so very fortunate to have the family you do. You have all worked hard to have a good life and I truly hope it continues for you, one and all. Bo |
| 44 | Mon May 7 2001 17:56 | Richard Colwell
| rcolwell@twtelecom.com |
| Saw your page while I was out searching today. Nice work. Glad to see you are still getting along and made it on your Moose trip. Hope all goes well, you find yourself in my prayers from time to time. |
| 45 | Mon May 14 2001 23:58 | Victoria Kramer
| victoria.kramer@usa.net |
| Great website Dad - although we have a lot of updating to do and since I moved to CA I can help you. Lova ya! And let's removed the naked pic from childhood ok? |
| 46 | Tue Aug 7 2001 12:52 | will hubben
| whubben@earthlink.net |
keep up the good work!!
love ya,
will |
| 47 | Sun Aug 12 2001 11:26 | Karen Gaskins
| klgaskins@juno.com |
| My father died in Jan 98 of ALS. What a devastating disease! I read with interest other's testimony of living with ALS and their courageous fights. I so hope they find a cure during my lifetime and yours. What concerns me is that 5 years ago, so many people never heard of ALS and it seems so many more people are coming down with it these days. Anyway, good luck to you! |
| 48 | Wed Sep 19 2001 17:13 | Roxane Thornton
| roxanet@sprint.ca |
| Thank you for letting me read your story. |
| 49 | Wed Oct 3 2001 18:22 | Doris Carlson
| dorisbc_1999@yahoo.com |
| Hi Lee! Keep the Faith is so important.My husband Larry had that faith fighting ALS 20 years.He wrote"By the Grace of God I Live". I just took out his ARMY Photo today again and he was proud to be a American as we all are today after what happened in NY. Yours! Doris Carlson [ Keep up your cheerful attitude that your PALS need!] |
| 50 | Mon Oct 8 2001 13:37 | Anne Kramer
| AMKRAMER2002@YAHOOO.COM |
| Hi. Just looked up my name for fun and lo and behold there is another Anne Kramer. I am also new at the inter net and still learning. When I tried to get an e mail address I could' use Anne Kramer nor AMKRAMER as it was already used. Is that you |
| 51 | Wed Oct 17 2001 15:55 | Elizabeth
| H2oyarlott@aol.com |
| Was going through some old wed addresses and wondered if your had anything new. I agree with Vicky, an update would be nice. It sure was nice visiting with you. Thanks for being the big brother |
| 52 | Thu Nov 15 2001 22:03 | Pat Hurt and Chuck Hoffman
| cjhoffman53@hotmail.com |
| Hey, Leroy. Have you talked with Padilla (aka Kathy Rood) yet? I am so glad we've reconnected after 36 years! I'm bummed that we've missed opportunities to visit when I'm in Napa. We don't get home too often, so I'm not sure when the next visit will be. Keep in touch. |
| 53 | Wed Nov 28 2001 00:52 | George Goodwin
| george.goodwin@sympatico.ca |
| I was dx in 1991 and am still to tell the story. I have enjoyed your site and will return. We at the ALS Society of Ontario, Canada have re-done pretty much completely from the previous one. I have added a link to your site from there, our address is www.alsontario.org if you would care to take a look. Any comments or suggestions are more than welcome. |
| 54 | Sat Dec 1 2001 18:33 | George Goodwin
| george.goodwin@sympatico.ca |
| I liked your site Lee and did go through and forgot to sign your guest book (old age is my story) but have come back to do so. I was dx in 1991 and so there is hope. I have seen at least more recognition of the disease since my first diagnosis and with that come the donations so sorely needed to find the cure. Hang in there and keep up the good work. |
| 55 | Wed Dec 19 2001 20:01 | Larry Reed
| hkdtkd@msn.com |
Yep buddy, it's me. Nice web-site. All except for
the scary pictures of that red-headed, ugly guy.
Probably ought to get rid of those before small children
see them. Just kidding. Wish I saw more of you and the
family. I miss you all and look forward to seeing
you any time I can. Take care my friend. My thoughts
are always with your family and yourself.
Larry |
| 56 | Sat Jan 5 2002 22:17 | tiffany kramer
| roxykid89@aol.com |
| hi my name is tiffany kramer (believe it or not) i was just looking around on the internet. well you see my dads name is eric kramer. i was wondering if he was maybe part of your family his step mom nacy kramer. wich she had adoppted him. well i was wondering if you were at all realated to him. |
| 57 | Thu Aug 22 2002 21:51 | lori butler
| alsasd@email.com |
| Hi -- If you have friends in San Diego...we have a Walk To D'Feet ALS here in Mission Bay on Sunday, October 20. We would love to have anyone who can't make it to SF here! |
| 58 | Fri Apr 25 2003 15:49 | Isabella Kramer
| |
| From day to destin journey's, hauntings from now till then, isabella kramer will alway's live |
| 59 | Wed May 7 2003 04:46 | James Hutton
| james_r_007@hotmail.com |
| Dx 10/2001. Started in the hands and it is not slowing down. |
| 60 | Sun Jun 15 2003 22:12 | Gary N Jewett
| gnj5858@colusanet.com |
| Hello .......... jst chkin n .... started my 15th yr this month ....... cant walk or talk, but im n purty good shape, 4 th shape im n ...... had a good visit w/ Jack at th "ask th xperts", last month ..... never say whoa n a horse race ..... Keep th Faith , gary |
| 61 | Mon Jul 28 2003 19:25 | ed kramer
| ekramer@wideopenwest.com |
| i am thinking about strting my own web page and was searching the net to find out what was out there,,, your site is great ,,, keep up the good work... |
| 62 | Thu Aug 14 2003 14:28 | Ernie Smith
| erniefsmith@sbcglobal.net |
| It was good to see you at the game last Sunday Lee. You have done a beautiful job putting together your site. |
| 63 | Thu Sep 18 2003 10:32 | Victor A. Buckley
| vpjb@punto.net.ec |
DX 1996 at Johns Hopkins, after symptons of over 1
year. Still drive automatic shift & walk with 3 wheel walker, eat & drink everything. Am in Quito, Ecuador for another year. Was in BDNF trial from ALS Clinic, U. of Miami, for 1 year,daily injections. I had the placebo. Still hoping for a cure! |
| 64 | Wed Oct 15 2003 23:48 | Chris Schiellack
| cschiellack@cj.com |
Shoes Directory
Nice website!
|
| 65 | Wed Nov 26 2003 08:30 | Horace J. Kramer
| hjkramer@voyager.net |
Nice site. I was looking for more on my Great Grandfather John Kramer, born April 04, 1822,Brunswick (Braunschweig), Germany. Died May 25, 1896 in Twin Twp. Preble County, Ohio.
Thank you,
Horace J. Kramer |
| 66 | Tue Dec 2 2003 09:07 | Callie McCarty
| erinha88@hotmail.com |
I really love the fact thad you are supporting ALS. My best friends dad died from it 3yrs ago andfor a speech in drama class im doin a speech on how i think doctors and the goverment should spend more money figuring the cause. If you know how many organization are supporting this could you tell me ? thanks,
Callie McCarty |
| 67 | Mon Mar 1 2004 11:24 | Karen Yokum
| kayokum@peoplepc.com |
| Great job! |
| 68 | Thu May 27 2004 19:17 | Gayle Lazur
| MiataMaid@aol.com |
| Just wanted to let you know that you have been an inspiration to me as I work through the battle my husband is having with this disease. It is good for us to know that there are PALS who have survived more than 5 years. Keep up all of your hard work and I know a cure will be found. |
| 69 | Tue Jul 13 2004 10:55 | Diann
| dparker_717@yahoo.com |
| This is a really good site. My husband was also on a vent for nearly three years. It takes some getting use too. Our two fourteen year olds at the time, they are seventeen now were taught how to suction, take care of the vent and heater and all the other things you need to know. They were a big help to me. I wish you well and hope for a cure for this disease soon. |
| 70 | Wed Jul 21 2004 06:10 | Jeannie
| |
You have a great web site, keep up the fight.
god bless Jeannie
Jeannie's place http://uk.geocities.com/jeannie_25als@btinternet.com/ |
| 71 | Tue Jul 27 2004 00:39 | Kathi Kup
| superkup@heart.net |
I enjoy talking to you on the chat.I have entered
your address in my computer so I will be able to send e-mails.Take care and keep up the good work !!!Blessing's to you and your family. |
| 72 | Tue Jul 27 2004 16:48 | Mike Eastwood
| mikeeastwood@sbcglobal.net |
| Ii look forward to a LOOOOOONG.... association with your Support Group. |
| 73 | Fri Jul 30 2004 21:51 | MARY KRIER
| mkrier2@msn.com |
If you haven’t sent your data yet please do so now, or if you’re a new member WELCOME, please fill out below;
Name;MARY KRIER
Male; Female; F
Trials;BDNF
Medications:RILUTEK, DOXYCYCLIN, PAXIL, SYNTHROID, CELLEBREX
Devices/Support Equipment: Y or N / When
BiPaps; Vents; G-TubesVENT 2 1/2 YEARS Wheelchair;ELECTRIC
Age; age at Dx; 54
Yrs with ALS;5 1/2
Why do you think you outlasted the 5 year dead line;
GREAT SUPPORT, HEALTHY DIET, DRUGS, VITAMINS, STAY BUSY..FAITH
Our Oldest member; Prof. Stephen Hawking, of the UK, Dx 1963 at age 21, 41 yrs LIVING with ALS.
|
| 74 | Wed Aug 4 2004 21:33 | Matthew Dowd
| dowdm@comcast.net |
| Hey there ranger-1 cool site how do the niners look. My home team the pats look poised for a repeat |
| 75 | Sat Aug 7 2004 17:14 | Elizabeth
| |
Nice job on the ancestry. You do have some errors but I will only correct mine. I was married 1978, Larry's mom was Eleanor G. Thompson, Larry was born 1956 and the twins were born 1981.
You look great and I read that things are going well. I hear differently so I will keep you in my prayers.
Though we are apart, we'll always be siblings in the heart.
|
| 76 | Thu Aug 12 2004 17:50 | John F. Daniele
| jldaniele@frontiernet.net |
| Great website |
| 77 | Wed Aug 18 2004 14:51 | Elizabeth
| ElizabethY5@kramerkin.com |
| In regard to the picture of the Kramer Family. Your description is confussing. This is the family of Henry Eugene and Charlotte. Not Henry Albert and Henretta. Their children, William Dickle (our grandfather), Robert Lindsey, John Albert(Bert), Harry Lyons, Emma Irene May |
| 78 | Sun Aug 22 2004 00:04 | Dave Scholl & Kevin Jenkins
| dscholl@onramp113.org |
Lee,
I had my stepson Kevin try a google search for your website. He found you! |
| 79 | Fri Aug 27 2004 12:54 | Chad Blooming
| BuickR@aol.com |
| Hi Everyone in the Kramer family. I've been recently diagnosed and am pretty scared right now. I love your web site. Lot's of good hope and optimism. Keep on rockin in the free world!! Take care. --Chad |
| 80 | Sat Aug 28 2004 08:21 | Ellen Blooming
| efpill@aol.com |
| my husband was diagnosed just a month ago -- it gives us courage and hope to see a website like yours -- thank you!!! |
| 81 | Fri Sep 3 2004 13:21 | Barbara Wallace
| Ladynum11954@aol.com |
well i finally made it to this one lol
now is this the one i can also go in and add pictures to also or do i do my own
love ya all
barbara |
| 82 | Mon Sep 20 2004 00:09 | Keith Forrest
| keithf@inna.net |
Hi,
I love your website, I love your ALS-TDF Friends & Family website, and I admire everything about you and your family. It takes great courage, strength, and love to survive and flourish as I see you have under ALS. I'm a researcher myself, although not for ALS. It's my true belief that we will be making great progress in the years to come against diseases like ALS. Stay strong, and keep your courage up, that's ironic me saying that to you, you probably have more courage in your pinky then I do in my whole body. Anyways... There are 1000's like me out there that may not personally know you, nor do I know anyone personally with ALS actually, but I feel it's one of the most unfunded diseases out there in the medical world. I just did a $100 donation in your name back at ALS-TDF. I can't do but so much. I can however make small periodic donations as well as keep both you and your family in my prayers.
Best wishes to you all and may god bless,
Keith
P.S. I will make periodic contributions to everyone who has a personal site on ALS TDF friends and family. I'm hoping as more people spread the word, perhaps we can get more people aware of this dreaded disease. |
| 83 | Wed Nov 10 2004 07:00 | Joy Ladd
| treehugger39047@yahoo.com |
| My companion/love of my life was dx'd on 10/5/04. We are seriously fighting progression of this disease thru heavy metal detox, nutrition and exercise. However, I'm very scared I'm not doing enough. Any ideas or suggestions would be appreciated. Especially from the wife. How do you keep a positive mental attitude? |
| 84 | Sat Nov 13 2004 22:22 | Larry Ulmer
| lulmer68@aol.com |
| The muscles have just started going away, I'm losing the ability to walk, the doctors have not given a diagnosis yet but other doctors have ruled out MS. I start with new doctors next week but I'm sure they will repeat the same tests, EMG, MRI, and blood to the same result. They don't know what is wrong. |
| 85 | Mon Nov 15 2004 08:25 |
| |
|
| 86 | Mon Nov 15 2004 08:27 |
| |
|
| 87 | Sun Nov 21 2004 08:22 | Nancy Reisinger
| tacomindiginger@aol.com |
| My husband has A.L.S. and I found your site trying to find info,and your site was very helpful. I am scared of the road before me and my husband. I want to thank you for being there for people like me. |
| 88 | Mon Nov 22 2004 19:35 | Ann Kini
| jannylynn_10@hotmail.com |
| Thank you for the information you give here. Many sites don't give real information of what it is, what the symptoms are. Everyone else seems to want us to give money to help to find the cure or help other patients monetarily. My father died of ALS or at least that was a part of it caused his death. I have 2 sons who I can now advise what to look for. Thank you. |
| 89 | Fri Jan 21 2005 19:00 | John Courtney
| jcplsi@yahoo.com |
| My mother is currantly struggling with als after only 1 1/2 years. I hate it. It is litteraly tearing me apart. |
| 90 | Mon Jan 24 2005 11:13 | Misty Sullivan
| bayleesmom03@yahoo.com |
| I appreciate you all trying to spread information about ALS. My father passed away in May 04 with lou gehrigs disease, he was diagnosed with it in 1996, we began to see his health declining in 1991. He was a very healthy big man, when he passed he was so pitiful. It is a horrible disease I try to tell people about it, I'm interested in learning more about the walks and where I donate money for the funding of research if you would please email me or mail it to 231 bartson street, Lavonia Ga 30553. Thank you so much! |
| 91 | Mon Jan 24 2005 11:13 | Misty Sullivan
| bayleesmom03@yahoo.com |
| I appreciate you all trying to spread information about ALS. My father passed away in May 04 with lou gehrigs disease, he was diagnosed with it in 1996, we began to see his health declining in 1991. He was a very healthy big man, when he passed he was so pitiful. It is a horrible disease I try to tell people about it, I'm interested in learning more about the walks and where I donate money for the funding of research if you would please email me than you very much! |
| 92 | Fri Feb 11 2005 19:44 | kelly miller
| |
|
| 93 | Fri Feb 11 2005 19:57 | kelly miller
| miller889@juno.com |
i've written this poem to friend al and i'd like to share it with anyone that has a friend, or family member that shares my frustration, my saddness.
i showed him the colors of a rainbow one day,
he showed me the courage, he showed me the way.
he taught me such a sweet life-long lesson,
made me believe life was a true blessing.
he isn't my brother, spouse or my dad,
yet taught me to appreciate what i have.
life to al is a priviledge, a gift,
and without a word my spirits he'd lift.
"simplicity" that is al's true voice,
"happiness" simply a matter of choice.
he's the captain of his own ship, and oh how he did sail,
then out of the blue his mobility did fail.
a man so fit- body and soul,
suddenly thrust a mighty high toll.
unjust, unfair, no words can explain,
about to be thrown a world full of pain.
not physical pain; that's not what i mean,
but a pain unheard, touched or seen.
scientists can't even figure this out,
so now he's met a difficult bout.
a bout i can't help him defeat,
yet a bout he's so determined to beat.
oh how i wish i could turn back to time,
oh how i wish this disease could be mine.
al if i had 3 wishes, they'd be all for you,
i'd wish your health could be brought back to you.
because when i think of you i see a true man,
by now you must know i'm your biggest fan.
you're etched in my mind and my heart forever,
so even apart,we'll be always together.
for you like that rainbow, you've shown me the way,
and my love for you, no words can say. |
| 94 | Fri Feb 11 2005 19:58 | kelly miller
| miller889@juno.com |
i've written this poem to friend al and i'd like to share it with anyone that has a friend, or family member that shares my frustration, my saddness.
i showed him the colors of a rainbow one day,
he showed me the courage, he showed me the way.
he taught me such a sweet life-long lesson,
made me believe life was a true blessing.
he isn't my brother, spouse or my dad,
yet taught me to appreciate what i have.
life to al is a priviledge, a gift,
and without a word my spirits he'd lift.
"simplicity" that is al's true voice,
"happiness" simply a matter of choice.
he's the captain of his own ship, and oh how he did sail,
then out of the blue his mobility did fail.
a man so fit- body and soul,
suddenly thrust a mighty high toll.
unjust, unfair, no words can explain,
about to be thrown a world full of pain.
not physical pain; that's not what i mean,
but a pain unheard, touched or seen.
scientists can't even figure this out,
so now he's met a difficult bout.
a bout i can't help him defeat,
yet a bout he's so determined to beat.
oh how i wish i could turn back to time,
oh how i wish this disease could be mine.
al if i had 3 wishes, they'd be all for you,
i'd wish your health could be brought back to you.
because when i think of you i see a true man,
by now you must know i'm your biggest fan.
you're etched in my mind and my heart forever,
so even apart,we'll be always together.
for you like that rainbow, you've shown me the way,
and my love for you, no words can say. |
| 95 | Thu Mar 10 2005 22:16 | Laurie Story
| lstory@cox.net |
| Thanks for your support and information. Laurie |
| 96 | Thu Mar 31 2005 14:12 | Elizabeth
| H2oyarlott@aol.com |
| Just wanted to get the word out on the Scholl Family Reunion. September 3-4 @ Dover Park. For information contact Bill, Elizabeth, Marleen or Barbara. The 3rd is planned as a picnic day and the 4th will be church service either at the church or same location as the picnic, still in the planning stages. Any help or suggestions are welcomed. Hope to see you there. |
| 97 | Sun Apr 10 2005 22:47 | Alan Damphier
| alinmontana@hotmail.com |
I was diagnosed with ALS two weeks befor Christmas of 2004 (nice Christmas present)I then got a second oppion and it was reconfirmed in Feb. 2005. The problem with living in the state of Montana, the last best place in the US,is that there is no support groups or as a matter of fact not many people know what AlS is.Everyone hang in and hope for a better tomorrow.
GOD BLESS,
Alan Damphier |
| 98 | Tue Apr 12 2005 12:21 | Suzi
| oh_suzi_v @yahoo.com |
| I am a volunteer for Samaritan Hospice in NJ and presently was assigned my first ALS patient. I am gathering info so that I can better know how to help as the disease progresses. I found this site very helpful. Thank you. |
| 99 | Fri Apr 15 2005 16:39 | Kikka and Jukka
| kikka@kinttupolku.com |
| You have a nice site. Our website is: www.kinttupolku.com |
| 100 | Mon Apr 18 2005 18:07 | Bobby Brannigan, pals, dx/94
| robertb@mitchell.main.nc.us |
| peace, luv, cure |
| 101 | Sun Apr 24 2005 16:01 | Gena Lindquist
| gimaquilter@msn.com |
A good neighbor of ours suggested that I take a look at what ALS is. Over the last 7 months, my husband has had a terrible time. Doctor's can't find any reason for his pain, muscle loss, weight loss. He just spent 5 days in the hospital due to a fall because he cannot support his own body. I am searching for answers. Thank you for your site, I will approach the experts about considering ALS as a possible culprit.
Sincerest hopes for your site, I know it is giving help to all who visit it.
Gena |
| 102 | Wed May 4 2005 13:50 | Sarah Kramer
| |
I am lookin for some of my family history. I have been contacting Kramers around the U.S. and any information you have would be very helpfull.
This is what I know my family came to America at the start of world war two and lived in Virgina before moving to Maryland. The only name I have is Darrell Kramer |
| 103 | Wed May 11 2005 16:12 | Eric Tauchert
| IronErichT@aol.com |
Hi Lee, just started to read some of your pages, very impressive.
I send you you 2 E-mails, please check them and let me know if you can help me to get back on to BrainTalk. Take care Eric |
| 104 | Thu May 26 2005 12:50 | Elizabeth
| H2oyarlott@aol.com |
After clicking on the Photo Journal you get this message.
No photos are available
Sorry, ranger-1@pacbell.net has not enabled any public albums in their account.
Just thought I would let you know. Your page is looking really good, as do you. Keep up the fight.
|
| 105 | Tue Jun 14 2005 20:08 | Kathy
| |
| A doctor gave me a good report on this company. www.freetransplant.net |
| 106 | Wed Jun 15 2005 14:53 | Mick Haggerty
| mick.haggerty@lapsafe.com |
justing starting the to walk along the als road. my younger sister 41 has just been diagnosed.
lots to understand and learn.
just looking for understanding friends...... |
| 107 | Sat Jul 9 2005 15:26 | tricia giacalone
| hobber30@aol.com |
| my sister in law has als at age 40 with two young daughters I have come to live closer for support. It is a terrible disease and hope we can find a cure soon |
| 108 | Sat Jul 9 2005 23:17 | Mike Bougher
| bougher@sbcglobal.net |
Hey Lee,
Great to see you have a website! I'm doing very well. Hope you are too.
Mike
mikebougher.com |
| 109 | Sat Jul 9 2005 23:36 | Mike Bougher
| bougher@sbcglobal.net |
Over 5 Club Info
Name; Michael Bougher
Male; Female; Male
Trials; None
Medications: Riluzol, Neurontin
Devices/Support Equipment: Y or N / When Yes/Wheelchair-2000, Bi-Pap-2001, Vent & G-tube -2004
BiPaps; Vents; G-Tubes; Wheelchair; Scooters; see above
Age; age at Dx; 33
Yrs with ALS; 7
Why do you think you outlasted the 5-year dead line? I decided to live and not die, therefore, electing to use life support devices when necessary.
|
| 110 | Thu Jul 14 2005 00:18 | Dan Loudemilk
| dnlcarol@yahoo.com |
| I will try to attend the Napa ALS support group this month. |
| 111 | Wed Jul 20 2005 13:47 | John
| |
| I just saw a story on Unsolved Mysteries about a ghost named isabella kramer. I googled it and found #58 in your guest book....Creepy. |
| 112 | Wed Jul 20 2005 17:00 | Matt Anderson
| Matthewibe@aol.com |
Hey Saw the unsolved mysteries episode today and googled it also and found this site?? WEIRD HUH!!
well... If anybody knows about Isabella Kramer can you please e-mail me?? |
| 113 | Wed Jul 20 2005 17:01 | Matt Anderson
| Matthewibe@aol.com |
Hey Saw the unsolved mysteries episode today and googled it also and found this site?? WEIRD HUH!!
well... If anybody knows about Isabella Kramer can you please e-mail me?? |
| 114 | Mon Aug 8 2005 23:33 | patsy bailey
| patandbill@zianet.com |
| i have a l s. so looking for all the information i can find. |
| 115 | Sat Sep 17 2005 00:45 | mary canon
| mecanon@swbell.net |
| My aunt was diagnosed with ALS today. Thank you for your "to the point" web-site. The information and candor are much appreciated. |
| 116 | Thu Sep 22 2005 21:51 |
| |
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| 117 | Tue Oct 11 2005 15:23 | michelle randall
| micherand@hotmail.com |
| My sister is going into her 5th year. and by far it is the worst. |
| 118 | Mon Oct 31 2005 01:22 | Dorit Weintraub
| dbw8971898@aol.com |
| Thank you for the information on your website...My uncle in Israel is suffering from ALS and I am trying to help search for alternative treatments which may help... |
| 119 | Mon Oct 31 2005 12:22 | Mark
| mmk@gmail.com |
| Likewise, google'd "Isabella Kramer" and got this guest book like the others. They just finished showing that Unsolved Mysteries episode. |
| 120 | Tue Nov 1 2005 17:56 | danielle kramer
| |
| Im a kramer too! |
| 121 | Tue Nov 1 2005 17:56 |
| |
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| 122 | Fri Nov 11 2005 21:14 | Carol Hayes
| bchayes1724@aol.com |
| I have a neighbor with ALS who can no longer care for herself. Her husband is struggling to work so he can maintain health insurance for her. He pays one nurse to care for her part time and relies on volunteers from the neighborhood and church to fill in. Are there any "free" resources available? I live in the Yorktown, VA area. Also what are some things I could do to help her when I stay with her while her husband grocery shops or runs errands. Thanks a bunch. |
| 123 | Fri Nov 25 2005 14:18 | Joseph G. Swallow
| joseph@westfiremfg.com |
Hello. I was doing a search on John Albert Kramer (my ggggrandfather) and found that you were also looking into this family line. I am descended from his daughter Almira C Kramer who married Hosea Davidson (grandson of Elijah Davidson). Would love to share notes.
I've been trying to find John's ancestors in Maryland and believe he is the son of Johann Adam Kramer.
Love to hear from you and thank you!
Joseph G. Swallow |
| 124 | Wed Dec 14 2005 20:41 | michael dodge shanw kramer is my mom
| michael_dodge@homail.com |
| hi love micher |
| 125 | Sat Feb 11 2006 14:09 | AA
| AIM: Avand18 |
Pardon my intrusion, but concerning that spirit known as Isabella Kramer (mentioned a few times above, following a mysterious sounding post from an unknown user).... Let me warn you not to take that lightly, and furthermore to openly interpret it as anything you could possibly imagine to be permanent, torturous or even sinister in some way.
The only real background info you can get on this disturbing story is on DISC 4 of the UNSOLVED MYSTERIES GHOSTS box set, as the "Lake Wales Ghost", where the Mann Family of Lake Wales, FL is mysteriously haunted by a ghost who identifies herself 3 different times through 3 completely unrelated mediums. The mediums were Ouija board, an independent psychic, and a name that randomly popped into the head of the homeowner. No woman by that name appears an any record from that area.
My encounter. I live in Pittsburgh, PA in a small c. 1960 4th floor one-bedroom apartment, and have done so for the last 2 years with my fiancee. We have had no paranormal experiences whatsoever before now. She has always believed herself to have some type of psychic abilities, most being that she learns things in her sleep without any prior real-life research or experiences. In my opinion, because of this unique gift, it's no surprise that some type of spirit might use her to attempt to manifest themselves in our world, because of the sleep factor and how intense her dreams/visions are.
Basically what happened was, we were watching the DVD in bed, and shortly before the Lake Wales Ghost segment, my girlfriend fell asleep, forcing me to continue watching by myself. All went well, until then end of it, when her feet started twitching rapidly, then she appeared to become distressed, and shook her head and said "mmm-mmm!" (for "no"). Then I attempted to wake her up and ask if she was okay, when all of the sudden she looked up, red in the face and began shouting at me loudly, demanding I get out of bed and leave the room. When I persisted to ask what was wrong, she still refused to answer until she started kicking me in the knees with her feet with pretty good force and insisting "I NEED TO GO TO SLEEP!!". So I just did what she wanted and left the room. At this point I was already scared pretty good, much more than I'd ever been before.
Curious, I sat down at my computer a few minutes later to attempt to get more info on the story. Just when I pulled my keyboard drawer out, I heard music coming from the bedroom. I ran in to see what it was, and low and behold a singing Valentine's teddy bear sitting on her nightstand had turned on and was playing by itself. It was just bought at a local mall not 2 days before. As I arrived, my girlfriend was just stirring, but was peaceful and complacent this time, a sharp contrast from a few minutes before. I immediately asked if she had turned on the bear, and she said no. In fact, there was a large stuffed animal between her and the electronic bear, that she could not have possibly reached over while sleeping, AND when I later did a test, I pressed and even beat a number of her stuffed animals over the button on the electronic bear, and none of it made the bear turn on, except when the button is pressed with a sharp object such as a human finger.
Compelled to get some kind of weird gratification, I grabbed my digital camera, which was already on a tripod from taking eBay pictures, and photographed the bedroom in all directions, with the flash on. The pictures produced one with a smoky haze in the foreground, and two others with one IDENTICAL "orb" (small dim spherical ball) in each. The coincidence of these 3 phenomena convince me that something beyond my comprehension happened.
For the next 8 hours, I would feel dizzy, weak, chilled, and felt like I was about to lose my hearing. Emotionally, I felt miserable, almost suicidal, like wanting to make it all stop. I work the nightshift (9-5), so I felt like this until around 1am, when it seemed to go away . The next day I finally learned that around that time, my girlfriend had verbally told the ghost to leave me alone (we both sleep later in the morning).
This spirit can be considered dangerous for several reasons:
1. Can tamper with your equilibrium and your senses. You may experience dizziness, headaches, fatigue, nausea, extreme chills, a constant feeling of being watched, foul smells.
2. Can instill negative emotions of many types, and can insert bits of information into your memory that you did not put there yourself.
3. Can briefly possess a human being's body (woman's, ironically).
4. Targets men with mischievous activity, and treats women as rivals.
5. Has appeared in orb, ectoplasm (smoke/haze), and briefly in human form.
6. Can produce electrical phenomena, such as devices turning on, or exploding light bulbs, etc..
7. Most importantly, she appears angelic but behaves demonically, so the activity patterns defy those of a conventional spirit tale.
In closing, if you or anyone you know feels or knows they possess some psychic abilities, please DO NOT summon this spirit! All past conventional attempts such as blessings and exorcisms only make the spirit come back stronger. If you somehow face a situation where you are experiencing these "symptoms" it is best to live as harmoniously as you can and not look down upon them, and better yet try to figure out what they want from you if you are given strong enough clues to that effect.
PS: You can think I'm full of BS or whatever, but I'm not some loser who goes around trying to scare people. |
| 126 | Wed Feb 15 2006 01:44 | sylvia gustafson
| smsgram141@sbcglobal.net |
My 86-yr old mother, Sarah, broke her neck, 2nd veterbrae, Dec 2001. She had an operation and lived with us for a year. She began falling a lot so we put her into an assisted living residence (ALR) for 2-yrs, then another ALR for the past six months.
She was diagnosed with ALS Aug 2005. She has a slow progressive ALS but the ALR cannot continue to care for her and we have to move her into a nursing home in February. We live in Napa. I've found the ALS site and have been interested in reading the e-mails where I discovered your e-mail and site.
I have read in the newspaper of other Napa residents who also have ALS and now I find that you, too, live in Napa. Do you know of more people in Napa that also have the disease?
I do hope that your ALS is slow in its progression. You sound like you are very much in control of you life. Thanks for your comments and encouragement. ~ Sylvia |
| 127 | Fri Feb 24 2006 22:01 | Kitty
| jblattner@cinci.rr.com |
| enjoyed your website, but disappointed it's not kept current (2004, last update). Maybe there's nothing new to report? I would like to know how to go about organizing an ALS walk - would I have to go thru a local (Cincinnati-are) ALS support group? Or organize my own? My dear friend has been diagnosed and my husband and I are feeling so very helpless -- and useless -- as we try to fight this unwanted visitor. Any suggestions? Thank you! |
| 128 | Thu Mar 2 2006 16:51 | Elaine Cooper Rash
| ecrash1@bellsouth.net |
| Our dad was diagnosed with ALS on 01/30/06 & he died on 02/07/06. We did not have enough time to research the disease before daddy died even though we have known of 4 cases in Columbia, TN. I was looking for a support group so I decided I would try this web site. We are all dealing with this in different ways. Our mother is still living & they would have been married 60 years in June. I have printed off the FAQs. Thanks for listening. |
| 129 | Sun Mar 5 2006 21:38 | Pam Savejs
| pamsellshomesinct@yahoo.com |
I have a dear freind that was diagnosed approx. 7 months ago with ALS and was given 2-3 years to live. She denies having the disease and is going to Natural Pathic doctors in hopes of receiving a different diagnosis. I hope she gets another diagnosis but doubt it. If hope makes her live a better life then it's hope that I will give to her. Thnak you for you web site. I will pass the info on to all of her other friends in our circle.
Gratefully yours, Pam |
| 130 | Sat Mar 18 2006 16:56 | Darlene Sibigtroth
| dsibigtr@comcast.net |
| Thank you for the information. As a spouse of a newly diagnosised patient, we are striving to find something to hold on to. |
| 131 | Thu Apr 13 2006 08:06 | Tim
| Tim-obryan@excite.com |
| nice page. here is mine www.obryan.zoomshare.com |
| 132 | Tue Apr 25 2006 02:35 | David
| david.wilson@alsforums.com |
Hi - very nice addition to the ALS Website community. We were hoping to have a link to our ALS and MND support forum.
The link to our site is ALS and MND Support Forum |
| 133 | Tue May 2 2006 17:15 | Leo Greene
| leogreene2005@yahoo.com |
| I'm a 60-year-old journalist from Southern California with a possible case of ALS. |
| 134 | Mon Jun 19 2006 23:06 | Donna Zweber
| donna.zweber@us.army.mil |
| Thank you for this website and God Bless all of your Pals and Cals. I had lost a son of 42 to ALS in 2001 |
| 135 | Sat Jul 1 2006 08:01 | Kylie (huggabug75)
| huggabug75@hotmail.com |
Hello My Matey,
Just want to let you know matey, that I love you, and I love the little chats we have. Also that I offen drop by your web page to have a read every now and then... See ya back at Goldens MATEY!!!
Love Always
Kylie xxx |
| 136 | Thu Jul 13 2006 17:05 | Eddyrae Kramer & other Kramers
| brkramer@telus.net |
Hello I am 11 years old and I am a Kramer also!! Isn't taht amazing!! Me and my grandma and my dad say hello. I was just on the enternet and decided to type in Kramer Family and I wanted to sign the guest book when it said guest book!! Well we all better go!! BYE
From: The other Kramer Family |
| 137 | Fri Jul 14 2006 15:30 | april jones
| dnmnad5@comast.com |
| My name is April and my Dad has ALS.He has had it for about 10 years now.I was hoping to find something about researches that maybe my Dad could try.I/m not sure what to do or who to ask or if it is to late for him to try something new.Maybe you could let me know. |
| 138 | Fri Jul 14 2006 23:52 | Toni Dyer
| gremarda1936@yahoo.com |
| July 14 2006: today diagnosed with ALS/ It has been a long haul, but finally found a neurologist at HUP in Philadelphia Love to all fellow friends. Keep in touch. |
| 139 | Fri Jul 21 2006 10:44 |
| |
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| 140 | Fri Aug 11 2006 04:38 | Isabella Kramer
| SistaEasy@yahoo.de |
Hey, believe it or not, my name is Isabella Kramer and I'm no ghost ;-)
My English is not so good because I'm a German 25 years old girl which lives in the former main city Bonn.
Just want to sign in and wishin' you all a nice day :D |
| 141 | Fri Sep 29 2006 23:00 | Tim Shawgo
| twshawgo@bigfoot.com |
| Love you Docie Hope to see you soon! God Bless |
| 142 | Sat Oct 14 2006 18:07 | pat
| patricbt@aol.com |
| my mom has had als for five plus years and was recently hospitalized for difficulty breathing - what she referred to as too much phlem. the doctor at the hospital told her that she was in the end stage of the disease process. of course, she already knew this. what happens next, and at what pace? i know there are no pat answers, but a guesstimate would be helpful. she takes rilutek and is on a bi-pap machine. |
| 143 | Tue Oct 17 2006 13:51 | joanne nelson
| photosbyjonelson@yahoo.com |
| my husband has been sick for 15 mo.now and all test have been normal.yet he is getting worse.last wk.our dr. told us that he feels he has "als".he has ordered a emg of his tongue.(the emg that was done last yr. came back normal,as were his last "eeg"and 'mri".he seems to be taking it well but i have periods of crying,really scared!i try not to let him see me upset. |
| 144 | Fri Oct 20 2006 15:34 | Jennifer Sweet
| jennifersweet66@hotmail.com |
| My mother was just diagnosed! She is only 56 years old.Please keep us in your prayers. Her name is Linda. Thank You |
| 145 | Tue Oct 24 2006 05:11 | David
| david.wilson@alsforums.com |
Just wanted to say hi as I found your website, some very good information.
Moderator at www.alsforums.com |
| 146 | Tue Oct 24 2006 05:13 |
| |
| Lou Gehrig's disease |
| 147 | Sat Oct 28 2006 00:41 | Heather
| hkohlman@gmail.com |
| We are not sure yet but the doctors are leaning towards my dad being diagnosed with ALS! We live in Montana and if this is true we will be in the need for some support groups. If you know of any please let me know! Until I know for sure I will keep each and everyone who has ALS and thier families in my prayers! God Bless! |
| 148 | Mon Dec 25 2006 14:43 | Donald Scholl
| dolphindon13@fuse.net |
I like all the stuff about the scholls.
thank you |
| 149 | Fri Jan 5 2007 00:55 | Michelle Fuller
| mwfuller1968@yahoo.com |
| Hello my sister inlaw has an appointment with the Babtist Hospital in Winston salem NC next week her doctor has told her that she may have ALS she is 32 years old and has 1 son 13 year old Jacob her husband of 14 years has Metastatic Melanoma and we are all praying this is not what she has thank you for your website it is very informative |
| 150 | Fri Jan 12 2007 22:28 |
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| 151 | Wed Jan 17 2007 16:30 | april wolauschek
| apwola@optonline.net |
| We have found out 1 week ago my husband peter has als. I am terrified! how we will go on without him in the near future and how we will pay are mortgage and our bills. |
| 152 | Sun Feb 11 2007 14:47 | Cookie
| cookiedd@aol.com |
| This is great! What a wonderful family you have. Was so nice to read you are a remarkable family. I admire your strength, determination and love you demonstrate to all. I am so glad I would living with als. I would had been lost if it wasn't for all the kind people here. |
| 153 | Sun Feb 11 2007 18:50 | Mike Rayl
| mike@mikerayl.com |
| Hi I am a PAL too... I enjoyed reading your story... www.mikerayl.com |
| 154 | Sun Feb 11 2007 19:55 | Tim Shawgo
| twshawgo@bigfoot.com |
| One of my oldest friends has ALS. He was always a fighter.... and has survived many things in life and now with ALS also... I love and admire in for many things but in recent years as a Christian brother too. OH it's you I'm writing about huh. DORK Aren't we lucky your sister kept me from whooping you.... love you Doc |
| 155 | Tue Feb 27 2007 15:25 | Mike Rayl
| metaroc@yahoo.com |
Hi lee
I enjoyed your site... |
| 156 | Thu Mar 22 2007 00:03 | Jim Barber
| jim.barber@sbcglobal.net |
| 62-year-old diagnosed in 12/06; early days, slow moving (or so I am told). Participated in ALS Awareness Day with Cal. Legislature on 20 Mar 07. Will continue to participate in ALS causes. |
| 157 | Fri Mar 30 2007 20:03 | Cindy Hard
| CHard93914@aol.com |
| My friend's cousin recently passed away due to ALS. Her Dr recommended that all family members be tested to see it they will develope the disease but MDA is saying that's not wise. What do you think? |
| 158 | Thu Apr 26 2007 10:26 | Claudia Burrows
| living_with_ALS@yahoo.com |
| Get well soon, Lee! My prayers are with you! |
| 159 | Fri Jun 8 2007 05:06 | Sherri James
| Sherrijames117@yahoo.com |
Oh God. This disease is the devil.
My Bro-in-law and another best buddy has just flew out to be by the side of there best buddy, Scott Ibling, before he dies. He was diagnosed 2 years ago with Lou Gehrigs. He is now 52# and given a week to live. His mind is intact, but he is in much pain and suffering. He refused a vent or feeding tube. I cringe thinking about him. WHy isn't there a cure? WHat is being done about this? WHat can I do.
Tomorrow they will all be going to watch the space shuttle take off there in Florida. Scott is so thankful they are there. God help all these people who are suffering. Please Jesus do something! My love and prayers to all who suffered in the this disease. WHat can I do!?
Much Love, SHerri James RN |
| 160 | Sun Jun 10 2007 18:31 | Ibis Diaz
| idiaz1@bellsouth.net |
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| 161 | Sun Jun 10 2007 18:36 | Ibis Diaz
| idiaz1@bellsouth.net |
| I was diagnosed with ALS 04/21/05. I live in Miami, FL. I am a single Mom so it's very difficult all be myself. Trying to take it one day at a time and learn as much as possible about this disease and how to try and stop it. Thank you for all your very helpful postings, they really help a lot. God Bless and keep the Faith. |
| 162 | Sat Jun 16 2007 04:18 | Carol Ott
| grams-ott@sbcglobal.net |
| Hi Lee and Anne, Hope to see you on Saturday at the ALS Support Group Meeting. |
| 163 | Fri Aug 10 2007 22:21 | Kim Hagen
| fortalgonquin@nmo.net |
It's okay about not calling, I'm not a phone person anyhow. Am glad I was able to write to you about Dave's funeral and I so much enjoyed seeing your photos at the site. You meant so very much to him, I don't think we EVER had a conversation that you weren't a part there. That trip up to Canada and the Great Moose Hunt meant so much to him, as well. I think it was a huge highlight in is life. Definitely the epitome of hunting trips, eh?
Connie Wright just passed by on her way home, she's been up there all week, between the farm and Anne's home. She also went out to Wally's gravesite in the trees behind his old house. Vinnie and I sat there for quite some time after the visitation thing. You can definitely still feel his spirit there at the Farm. Keep in touch, and if I run across any good photos, I will send them your way. I really appreciate your note. Cheers from the Northern Tier,
Kim Hagen
PS I think your website is absolutely stupendous!! I love that photo of you in uniform. |
| 164 | Mon Aug 13 2007 09:02 | mary anne
| mareirish@sbcglobal.net |
| thanks, very informational web site. I love the "men in black". Thanks for sharing.. |
| 165 | Sun Aug 19 2007 08:30 | Robert Coutts
| jarobco@hotmail.com |
Great site. Thinking of you.
Robert ( New Zealand )
http://robertmnd.blogspot.com |
| 166 | Wed Aug 29 2007 12:19 | Jeff Lester (Ragingbear)
| ragingbear@sbcglobal.net |
Hi Lee & Kramer Family,
What a wonderful and incredible family and website which is proof that the power of love is much more powerful than ALS. As a father of three daughters (12, 5 & 2), the fantastic new wedding photos are such an inspiration for me to be there for all of my daughter's weddings!!! Lee while our life stories are very different, our ALS paths and philosophies are incredibly similar and I feel as you are one of my great ALS friends especially since we are ones of a dwindling few who still remain after 14 and 15 years respectively with ALS. We have lost so many great friends and fantastic people but they continue to live through us as we guide new generations of PALS and CALS! If you ever travel near St. Louis on your way to Michigan please stop by and pay us a visit.
Your friend always,
Jeff Lester |
| 167 | Mon Sep 3 2007 01:09 | Elizabeth
| H2oyarlott@aol.com |
In case this doesn't work, I'm was sending a message I praying for you
Get More at COMMENTYOU.com |
| 168 | Fri Sep 21 2007 20:06 | jason billingsley
| jaraxle1zx@sbcglobal.net |
| you were a great person i will miss you |
| 169 | Mon Sep 24 2007 22:00 | Jack Ratcliffe
| jratcliffe |
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| 170 | Mon Sep 24 2007 21:58 | Jack Ratcliffe
| jratcliffe@msn.com |
| Great job I enjoyed reading your stories. My wife Rita has ALS since 2003. Trach,feedingtube vent has it all. Lee can you tell me what kind of item you have on the back of your W/C to carry your vent also how can I get on the chat line to read all of the post. I receive soon answers but not the post. I used to go to the MDA site all the time. My sign in name was golfer. I went a lot when Sue was alive. God Bless you and your family for keeping the faith |
| 171 | Sat Nov 3 2007 15:11 | Martha Kramer Hollenbeck
| g_hollenbeck@msn.com |
| My relatives came from Rudern, Wurtemberg Germany the Farthest i can trace back to John Jacob Kramer born in Oherdingen, Germany moved to rudern, germany had a son Christian, john jacob and johan george and so forth down to me |
| 172 | Fri Nov 30 2007 22:14 | Susan Baker
| advosue@hotmail.com |
I can't tell you how much I admire you and how much I've learned from you, Lee! I often find myself in tears after reading your passionate posts on the living with als site. I rarely post but read each & every one. After losing 2 uncles to limb onset within the past 5 yrs, my Mom was diagnosed with Frontal Temporal Dementia Bulbar Onset this past March. Due to her dementia and our family situation, she has been in a wonderful care home for 2 months now. My Dad was caring for her & at 77, could no longer pick her up when she fell and the stress was becoming too much.
I wish I knew the answers to all of the issues that face those of us dealing with this terrible disease. I plan to advocate for as long as I live! I also need to be getting our family into studies and am struggling with finding the time required. So much needs to be done!
Blessings to you and your family! You're in my prayers... |
| 173 | Sun Dec 23 2007 00:36 | Kim Meister
| mmeisterfamily@aol.com |
| Thanks for inviting me to your family web page! |
| 174 | Sun Dec 23 2007 00:43 | Shellia Dianne Kramer
| sdkramer@hotmail.com |
Anybody related to Herman William Kramer ? born 1857 or 1861 in Germany died Illinois Nov 16, 1895
Carlinville or Madison Co. Thanks |
| 175 | Sun Jan 6 2008 17:14 | clyde vance
| stcd5@yahoo.com |
| haven't been formally diagnosed but given a 60%. will know day after tommorrow just needing info from someone who has been there |
| 176 | Sat Jan 12 2008 23:26 | Lee
| ranger-1@pacbell.net |
| Clyde Vance, tried to email you but your address said closed, sorry. You can email me anytime. |
| 177 | Sun Jan 13 2008 15:28 | james
| jmper5@aol.com |
| life as you once knew changes drastically when a family member is stricken with ALS.... |
| 178 | Tue Feb 5 2008 14:00 | shelly
| kilmer |
| My mother was just diagnosed yesterday with AlS. |
| 179 | Sun Feb 10 2008 00:22 | peter mitrevski
| bird04@sbcglobal.net |
| hi i just wanna see how lee is doing i havent heard from him in a while hope everything is well plz write back asap my pool name is same as my email and yim is same write back soon tc |
| 180 | Mon Feb 18 2008 08:42 | Elizabeth
| H2oyarlott@aol.com |
"Strange is our situation here upon earth. Each of us comes for a short visit, not knowing why, yet sometimes seeming to a divine purpose. From the standpoint of daily life, however, there is one thing we do know: That we are here for the sake of others...for the countless unknown souls with whose fate we are connected by a bond of sympathy. "Many times a day, I realize how much my outer and inner life is built upon the labors of people, both living and dead, and how earnestly I must exert myself in order to give in return as much as I have received."- Albert Einstein
My brother has given so much to the ALS community, and he did this not to recieve anything back but to pave a way for others who will come to travel it's path.
As siblings we have had many struggles and differences, learning and growing from each of them. As you go through the transision from here to eternity, be calm, let God guide you and because of him, His eternity will be your peace. We will see each other again and as a family of God, all we had here will remain, and what we have above will be wonderous. See you soon. |
| 181 | Thu Feb 21 2008 15:36 |
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| 182 | Tue Mar 4 2008 20:44 | Pat Hurt
| plhurt@hotmail.com |
| Leroy, you are on my mind and in my prayers constantly. Thanks for paving the way to the hereafter for the rest of us. I look forward to seeing you there some day. How wonderful it will be, to get a big bear hug from you once again. All my love, Hurt |
| 183 | Mon Mar 17 2008 13:50 | Alper KAYA
| dralperkaya@superonline.com |
Lee,
I don't know what to say. I am speechless. You are the frontman of our society.
I never forget you. Your certificate will always remind me of you.
My deepest condolence to family.
God bless
Alper from Turkey |
| 184 | Mon Mar 24 2008 01:42 | Laurene aka Puzz or Boss
| one_puzzlegal@yahoo,com |
I had the privilege and honor of knowing and working with "Ranger" at our yahoo allstar pool league. He never ceased to amaze me with his abilities. I will always remember and cherish our friendship and his dedication to our league. My heartfelt condolences to the Kramer Family. He will be missed.
Golden Heart Billiards |
| 185 | Mon Mar 24 2008 04:55 | Laurene
| one_puzzlegal@yahoo.com |
I wanted to let everyone know just how very well Ranger did at Golden Heart. Here are Lee's League stats.
As most of you know Ranger did not have the use of his arms and did not use an aimer (cheat) program to shoot pool.
That didn't stop him from making tourneys, countless boosting of tourney winners stats and moderating our lobby.
Here are just some of his AWESOME accomplishments in/for our league:
Winner of 4 Official Yahoo Tourney Trophies for Backgammon
Truly Amazing Billiards Stats :
ranger-1@pacbell.net 4005 Wins - 3698 Losses - 51% win ratio - 7,703 Total Games Played
Winner of 8 Most Valuable Player Awards vs other league's players at Inter-league Battles (one contest he went 8 wins 1 loss)
Winner of 6 Rack N Run Contests
Winner of 2 Doubles/Partners Contests
40 Times Capped/Maxed Out His Pool Ratings
Winner of 2,284 Golden Heart Tourney Trophies |
| 186 | Mon Mar 31 2008 03:12 | Greg Hammermeister
| ll_vader_lll@yahoo.com |
| My condolences to Lees family. He was a class act who showed considerable courage in his fight against als. RIP LEE, you will be missed by all your friends at golden heart |
| 187 | Sat Apr 12 2008 18:36 | Kim Hagen
| fortalgonquin@nmo.net |
We were good friends of Wally & Dave Brown. Hadn't heard about LeRoy passing away until Connie Wright just told us. Am glad that Preston & Lizzie were able to be there for the funeral, and I know every time I talked to Dave (before he passed away last summer,) you guys were tops in his thoughts and remembrances of happier times.
I often think that big moose hunt trip was as important to Dave as it was for LeRoy. It's one of the stories I often tell to people and I think it exemplifies what a stand-out guy LeRoy is/was.
Am so sorry for your loss, as a family. But you all sure have many great memories of a wonderful man. I will never forget him either!
Kim, Warren, Vincent & Gramma Hagen
Our thoughts and prayers are with you, even though it's a bit belated! |
| 188 | Mon Apr 21 2008 20:08 | Ken Watson
| kenwa1@sbcglobal.net |
I offer to you my belated condolences upon learning of Mr. Ranger's (Lee's) passing. I conversed with him online at Golden Heart's Yahoo Pool. I found him to be a man of great character, a gentleman, and extremely talented. You can imagine my surprise when I learned of his physical challenges...after several months of him whipping me at the pool table.
Blessings to you during these days, weeks, months and years ahead. |
| 189 | Tue Apr 29 2008 02:17 | Christy Thurston
| cthurston@mirabellabeauty.com |
| I found your site while looking for info on ALS. Someone I love very much was diagnosed a couple of months ago and I hope to spen as much quality time with hiim as possible. Thanks for the good information. |
| 190 | Wed Jun 25 2008 11:10 | Susan Moore
| stmoore@embarqmail.com |
| My husband worked for the Hartford Police Department. Headquarters was built on an old incinerator and they had an indoor range. The led levels are very high in parts of the building. Four of his co workers have been diagnosed with ALS and we think a 5th person may have it. The rate for cancer is also off the charts among HPD employees ---my husband is included in that group but as severe as his illness was we consider ourselves to be fortunate not to have been one of the ones with ALS. We are trying to get information together to make the city close the building and to provide for diagnostic tests for all who worked there. Your site has been most helpful in providing basic numbers ---1 in 800 men not 4 in 500! |
| 191 | Fri Aug 8 2008 08:11 | hanny keti
| ojo124@yahoo.com |
very nice ok
good and will coem back |